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PPH Primary Pulmonary Hypertension Forum

This site has been created as a forum where primary pulmonary hypertension (PPH) patients and their family members can share their experiences and discuss how they have coped or are coping with this disease. The site also provides practical advice on how to deal with the emotional and physical pain of primary pulmonary hypertension as well as the various types of support you may need and how to get them.

Recently posted in our discussion forum:

Maya Osborne's PPH Story

I will never forget the day the school nurse called me and told me that my daughter, Maya, appeared to have a breathing problem. She had been sent to the nurse when she said she wasn't feeling well during her gym class... It took another 2-1/2 months to find out what was wrong.

When the doctor finally told us she had primary pulmonary hypertension, it sounded like something your grandfather would get -- not a 16-year-old girl. Since then, each day is a struggle. Maya hates taking the medication and we continually convince her that there is no other option. She complains about being different, about everything being harder for her... I too wish she could just be a normal teenager....

View this and other personal stories in the discussion forum

 


 

 

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